and other Neurodegenerative Disorders
Parkinson's Disease can't be cured and living well in the presence of the disease can be a real struggle, frequently bringing to mind the concept of "fighting" the disease, with programs being named consistent with this, like "Rock Steady Boxing". However, a variety of medications and activities can help with controlling and dealing with the symptoms, sometimes dramatically. The graphics on the left convey that while many reseerch trials are being conducted on finding new drugs for the disease few "make the cut". Increasingly. however, drugs once used for other conditions, particularly some used for depression and diabetes are being "re-purposed" for use with Parkinson's (see Durães et al, 2018, for a discussion). As loss of dopamine is one of the primary underlying contributors to the symptoms of PD it's important that medication is taken to supplement the body's supply, often with a levodopa-based medication, and that such medication is taken appropriately -- as discussed in the second video below. The second video shows the introduction to the free training program for those interested in the principles of exercise for people with Parkinson's. This excellent program comes from the Brian Grant Foundation whose website also covers material on nutrition and on dealing better with activities of daily living. While exercise is regarded as being an essential complement to medication, it's important to make sure such exercise is conducted safely, as depicted below in the third video. The fourth video talks about one of the "oldest" neurostimulatory treatments used to help people for whom other forms of treatment, usually drugs, have lost their previous effectiveness. Newer methods are also now available, some of which have been found to improve higher cognitive functioning -- see the /TREATMENTS
The framing of this section of the site follows the approach proposed by Wendy Henderson here, who highlights the great importance of patients educating themselves about the disease, its management, and how to live well with the disease.
Technical information on Parkinson's Disease is taken from the Mayo Clinic here.
More in-depth discussion of issues, and links to bibliographies and additional resources is available here
-- links to external resources are highlighted and in a different color to the background.
Those on my Google drive are located in the folder the link is provided to, for example, /ETIOLOGY. Read only access to my drive is available here
Please note: The reference list provided (RIS format) is very much a snapshot of my references surveyed at a point in the recent past. For more recent or more extensive information -- please don't hesitate to contact me here
I am exploring ways of making a more comprehensive service using Mendeley.
Key sources of information:
How Do I Know "this" information is reliable -- see this general guide
* ParkinsonsNewsToday.com, and Forums;
* ParkinsonsDisease.net -- good for coping / living well / interpersonal tips --
I especially like the combination of accuracy, frankness, and humor on PD Pundit;
* Google Scholar -- individual; and automatically updated on exercise using exercise training OR rehabilitation OR "resistance training" OR therapy "parkinson's disease" "systematic review" - new results
* Individualised journal recommendations, and "contents pages" from various journals including from ScienceDirect; Journal of Parkinson's Disease; npj Parkinson's; NewsMedical Neurology/Neuroscience; Alzheimers -- whereupon I write directly to the authors for papers not available via OpenAccess
ACCESS TO THE JOURNAL ARTICLE AND RESOURCE STORE IS AVAILABLE HERE
Search for articles by name of author -- highlighted -- or in general area
if you have the time I recommend browsing through the entire collection -- sometimes materials have been copied into more than one folder, sometimes not -- depending on my awareness of, and quickness-of-response to that awareness, articles relevance to more than one topic -- e.g., articles on cognitive impairment -- and placed in that folder -- but "might" also be placed into the folder on Diagnosis-Prognosis/Assessment -- see for example the article by Bougea et al 2018
* I find a local, supportive, team of health care professionals, able to really "talk to" rather than "talk at" me far better for monitoring and guiding my progress than a more, (in every sense!), exhorbitantly expensive, self-proclaimed expert -- then again, I do find the following very helpful AND FREE (sorta):
* Sarah King's Invigorate Physical Therapy site on Facebook here
* Lastly, I wish, as the Michael J. Fox Foundation recommends, that I had available a real "Movement Disorders Specialist" neurologist, rather than the team of generalists that is all we have available in my area --see here
Discussion of, and links to relevant research on, issues of the role of self-management, self-efficacy, quality of life, and palliatice care as applied to longterm conditions such as Parkinson's Disease